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Institute of Biomedical Ethics and History of Medicine (IBME)

New Publication from Sophie Gloeckler, Tanja Krones, and Nikola Biller-Andorno: Advance care planning evaluation: a scoping review of best research practice

Gloeckler, S., Krones, T., & Biller-Andorno, N. (2021). Advance care planning evaluation: a scoping review of best research practice. BMJ Supportive & Palliative Care. 

Various indicators have been used to evaluate advance care planning, including completion rates, type of care received, and satisfaction. Recent consensus suggests, though, that receiving care consistent with one’s goals is the primary outcome of advance care planning, and assessment should capture this metric. Goal concordant care is challenging to measure, and there is little clarity about how best to do so. The aim of this scoping review was to explore what methods have been used to measure goal concordant care in the evaluation of advance care planning. While the reviewed studies demonstrate the possibility of working towards a solid methodology, there were significant weaknesses. Notably, studies often lacked enough reporting clarity to be reproducible and, relatedly, key concepts, such as end-of-life or preferred care, were left undefined. The recommendations that follow from these findings inform future research approaches, supporting the development of a strong evidence base to guide advance care planning implementation in practice.