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Institute of Biomedical Ethics and History of Medicine (IBME)

Forum for Global Health Ethics – Upcoming Webinar: «Access to Healthcare: Therapies for Rare Diseases. What is Fair?»

The Forum for Global Health Ethics invites you to a new edition of its Webinar Series. Our next webinar «Access to Healthcare: Therapies for Rare Diseases. What is Fair?» will take place on Friday, 8th December. Time: 2:30pm – 4pm in London / 3:30pm – 5pm in Central Europe / 5:30pm – 7pm in Dar es Salaam 

To register please click here.

In this webinar our speakers will discuss access to healthcare with a focus on therapies for rare diseases. We will address the main justice questions that arise regarding access to therapies for rare diseases, exploring the tensions between cost-effectiveness and fairness considerations. We will share examples and tackle how these tensions play out in countries in the Global North and in the Global South. 

Our speakers are: 

- Jasmin Barman-Aksözen, International Porphyria Patient Network & University of Zurich, Switzerland 
- Rosemarie Bernabe, Centre for Medical Ethics, University of Oslo, Norway 
- Julie Makani, Muhimbili University of Health and Allied Sciences, Tanzania & Imperial College London, UK 
- Lars Sandman, National Centre for Priorities in Health & Linköping University, Sweden 

Hosts: Nikola Biller-Andorno & Tania Manríquez, University of Zurich 

Organisers: Forum for Global Health Ethics (an outreach project by IBME), European Association of Centres of Medical Ethics (EACME) and Swiss Medical Weekly (SMW)