Biographical sketch
Graduation at the Faculty of Law of the University of Rosario (Argentina). Doctoral degrees in law from the Universities of Buenos Aires (1991) and Paris-Est Créteil (1994), both on topics related to the ethical and legal aspects of medically assisted reproduction. Adjunct Professor of Civil Law at the University of Buenos Aires (1994-1998). Visiting Scholar at the Faculty of Philosophy of the Laval University, Quebec, Canada (1999). Humboldt Foundation Fellow at the Department of Medical Ethics of the University of Göttingen, Germany (2001-2002) and DAAD-Visiting Professor of Bioethics at the same University (2003). Postdoc Fellow at the International Centre for Ethics in Sciences, University of Tübingen, Germany (2004-2005). Member of the UNESCO International Bioethics Committee (1998-2005). President of the European Society for Philosophy of Medicine and Healthcare (ESPMH) (2014-2016). Researcher for the EU Project "INTEGRITY" on the teaching of scientific integrity in Europe (2019-2021). Member of the UNESCO Expert Group on the Ethics of Neurotechnology (2024). 'Privatdozent' of biomedical law and bioethics at the Faculty of Law, and Research Associate and Coordinator of the PhD Program Biomedical Ethics and Law (Medical Track) at the Institute of Biomedical Ethics and History of Medicine of the University of Zurich.
Research interests
- International human rights law and biomedical issues
- The role of human dignity in bioethics
- Ethical and legal issues raised by genetic testing and biobanks
- Advance directives
- Neuroethics and neurolaw
- Human germline gene editing
- Scientific integrity
Publications
ZORA Publication List
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Publications
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2010
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Book Section
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La signification du concept de dignité humaine dans la bioéthique internationale. In: Baumbach, C; Kunzmann, P. Würde - dignité - godnosc - dignity: Die Menschenwürde im internationalen Vergleich. München: Herbert Utz Verlag, 209-222.
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Regulatory discrepancies between the Council of Europe and the EU regarding biomedical researches. In: Den Exter, A. Human rights and biomedicine. Antwerpen: Maklu, 117-133.
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2009
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Journal Article
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Recherche biomédicale sur les sujets vulnérables: à quelles conditions?. Bioethica Forum, 2(2):59.
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Advance health care directives: towards a coordinated European policy?. European Journal of Health Law, 16(3):207-227.
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Commentary 2. Presymptomatic Testing of Children for Huntington’s Disease. Virtual Mentor: ethics journal of the American Medical Association, 11:665-668.
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A noção paradoxal de dignidade humana. Revista Bioética, 17(3):435-449.
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Advance Health Care Directives: Towards a Coordinated European Policy?. European Journal of Health Law, 16(3):207-227.
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Human dignity and human rights as a common ground for a global bioethics. The Journal of medicine and philosophy, 34(3):223-240.
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Book Section
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La tutela della dignità umana: fondamento e scopo della Convenzione di Oviedo. In: Furlan, E. Bioetica e dignità umana: Interpretazioni a confronto a partire della convenzione di Oviedo. Milano: FrancoAngeli, 77-94.
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Human Dignity and Human Rights. In: ten Have, H; Jean, M. The UNESCO Universal Declaration on Bioethics and Human Rights. Background, Principles and application. Paris: UNESCO, 91-98.
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"Liberdade" e "dignidade" da pessoa: dois paradigmas opostos ou complementares na bioética?. In: Martins-Costa, J; Möller, L L. Bioética e responsabilidade. Rio de Janeiro: Forense, 73-93.
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2008
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Journal Article
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Le diagnostic préimplantatoire dans les législations des pays européens: sommes-nous sur une pente glissante?. Bioethica Forum, 1(2):96-103.
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Global bioethics and human rights. Medicine and Law, 27(1):1-14.
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Book Section
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Principio de precaución. In: Tealdi, J C. Diccionario Latinoamericano de Bioética. Bogotá: UNESCO - Red Latinoamericana y del Caribe de Bioética: Universidad Nacional de Colombia, 345-347.
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Warum braucht eine globale Bioethik die Menschenrechte?. In: Biller-Andorno, N; Schaber, P; Schulz-Baldes, A. Gibt es eine universale Bioethik? Paderborn: Mentis, 59-72.
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2007
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Journal Article
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Can there be exceptions to fully informed consent in randomized clinical trials? The case of the randomized consent (Zelen) design. Jahrbuch für Recht und Ethik, 15:352-389.
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2001
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Journal Article
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Chapitre 3. Justice and equity in transplantation medicine. Journal international de bioéthique = International journal of bioethics, 12(3):33.
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