I obtained an MSc in Medical Anthropology and Sociology and successfully concluded the Advanced Erasmus Mundus Master of Bioethics at the University of Leuven.
During my years in the Netherlands I completed a research internship at the Right-to-Die Association (NVVE) that resulted into a position at the organization. As a result, I came into contact with the views and attitudes of health care professionals, patients and family members faced with decision-making at the end-of-life.
In addition, my MSc degree in Medical Anthropology gave me the opportunity to explore the international debate of end-of-life, palliative care and hospice work in the state of Oregon (US), doing a literature review and conducting structured interviews regarding patients’ perspective on the process of death and dying.
In 2017 I completed my PhD degree in Biomedical Ethics and Law at the University of Zurich with a dissertation on "At the Beginning and the End: End of Life Decision-Making for Extremely Preterm Infants". This study was funded by the Swiss National Science Foundation (NFP67: End-of-life) and aimed to examine attitudes and values that play a role in end-of-life decisions for preterm infants.
Currently I am working at the IBME on the DIPEx Project, which aims to collect data about patients experiences. I am also Research Fellow at the Department of Health Sciences and Health Policy of the University of Lucerne.
DIPEx.ch - Dementia
Dementia is an umbrella term used to describe a range of progressive neurological disorders; namely conditions affecting the brain. It is an overall term that describes a group of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person's independence and ability to perform everyday activities.
Today more than one hundred dementia diseases are known, most of which occur very rarely. Alzheimer's disease is the most common form of dementia. The second most common form is vascular dementia. Mixed forms are often present, especially at an advanced age.
According to international definitions, Dementia involves damage of nerve cells in the brain, which can occur in several areas of the brain. These areas are: attention, language, learning and memory, so-called executive functions (planning, abstract thinking, use of strategies, problem solving), performance and social interaction skills. The disorders caused by dementia restrict the person concerned in his or her activities in daily life and/or at work.
For more information about dementia please visit Alzheimer Switzerland.
In this project, people affected by dementia and their families talk about their lives with dementia, their experiences with medicine, changes in their daily lives and the support they receive. You can watch these stories as videos, listen to them or read them as text.
Their contributions are intended to help provide better support for future patients and relatives: the patients of today helping the patients of tomorrow.
This module is made possible by the financial support of Alzheimer Switzerland.
Download the information leaflet here: