PaediEthics – Paediatric Ethics Research Group

The PaediEthics group of the Institute of Biomedical Ethics and History of Medicine investigates research topics at the interfaces of medical ethics and childhood (including pre- perinatal period and adolescence). It supports and evaluates clinical decision-making by action research and discussions of current knowledge, attitudes and literature. 

We conduct both qualitative and quantitative research with empirical and normative methodologies in a wide array of research topics. The PaediEthics group unifies national and international researchers based at or affiliated with the University of Zurich in close collaboration with the University Children's Hospital of Zurich. 

paediethics


 

Current research projects and subgroups

  1. Shared Decision-Making and Best Interests with Parents, Families and Children 
    a.    Shared Optimum Approach
    b.    Narratives on ECMO in peadiatrics
    c.    Decision-Making and Narratives in Inoperable Brain Tumors in Childhood
  2. Patient or Parent-Powered Research and Self-Management in Rare Diseases
  3. Ethics and History of Intersex / Differences of Sex Development Diseases 
  4. Paediatric Palliative Care and Ethics: dilemmas, concepts and outcomes in life-limiting illnesses
  5. Clinical Ethics in Paediatrics - Aims, Methods and Outcome
  6. Autonomy and relations: investigating the role of shared decision making in young hemato-oncological patients
  7. Cultural diversity and transcultural decision-making in pediatrics
  8. Children's Rights, Consent and Capabilities in Pediatrics
     

PaediEthics research group leader is Dr. Jürg C. Streuli, MD, PhD, Senior Research Fellow at the IBME and Vice-Co-President of the clinical ethics committee at the University Children's Hospital, Zurich.

Currently 2 PhDs, 2 post doc, 1 MD and 3 Masterstudents are involved in the Pediethics group research projects along with collaborators of several international universities.

You can follow theme-related post on twitter: @DrJStreuli

Publications (since 2008) are usually associated to one of the nine research projects; non-attributed publications are available here.